Waldenström Macroglobulinemia Support Group
Waldenström Macroglobulinemia New Zealand (known as Waldos) is an Affiliate of the
(IWMF) International Waldenström Macroglobulinemia Foundation. We are a non-profit organisation.
You are not alone. We aim to help you live with Waldenströms.
Since September, 2022, we have been working to have more treatments funded by Pharmac as we lag well behind other countries where newer drugs are standard treatment now.
WhiMSICAL Study
The WM Study In CARTWHEEL: WhiMSICAL registry investigators are seeking help from all WM patients globally to contribute their own data for an abstract for the major hematology conference, the American Society of Hematology meeting. They analyze the updated data from time to time..
Waldenström Macroglobulinemia Study, a world-first, ethically-approved, comprehensive global database of patient-derived data about your WM experience
THE 29TH ANNUAL EDUCATIONAL FORUM
The 29th Annual IWMF Educational Forum was held on 4th to 6th May in Washington.
We are privileged to be able to view presentations from the best international WM experts.
Videos from Ed Forums HERE!
A-NZ BEACON Newsletter
This is a periodical magazines published to provide information that relates to members of WMozzies & Waldos in NZ. This is more local information. MORE
Rare Disorders New Zealand
"No country can claim to have achieved universal healthcare if it has not adequately and equitably met the needs of those with rare diseases." MORE